The British Dupuytren’s Society….
provides support and information to people affected by Dupuytren’s disease, Ledderhose disease, Peyronie’s disease and related conditions. Our goal is to raise awareness, improve knowledge of the treatments available and encourage research into their prevention and treatment.
A worldwide fundraiser campaign has started to raise funds for the Dupuytren Foundation who are planning a large scale study to find biomarkers that may predict active disease in patients blood. The hope is that this can lead to a cure for the next generations.
We have welcomed three new trustees to our charity in the last week! Mr Mike Hayton BSc (Hons), MBChB, FRCS (Trauma and Orth), FFSEM (UK); Mr Richard Shaffer MBBS, BSc (Hons), MRCP, FRCR; and last but by no means least Mr Dominic Furniss DM MA, MBBCh, FRCS (Plast). Two hand surgeons, one of whom is also involved in genetic research, and a radiation oncologist!
HAVE YOUR SAY!
The British Dupuytren’s Society is holding a focus group in London on Wednesday 28th September 1030am-130pm. We are looking for 8 people with either Dupuytren’s disease, Ledderhose disease, Peyronie’s disease or a related condition to attend. If you would be interested in finding out more please email email@example.com
We have two new trustees, Mr David Ralph BSc MS FRCS (Urol) for the Peyronie’s side, and Dr George Flanagan, podiatrist surgeon for the Ledderhose side.
Read our summer newsletter, and subscribe to our mailing list.
The British hand surgeons (BSSH) together with the James Lind Alliance (JLA) have a short survey for any patients with hand or wrist conditions in Britain, or their carers. Go to this page to read more and click on the survey link.
NICE appeal decision 29.06.16
Our #StandUpforPeyronies campaign launched today 13.06.16
The survey started in 2014 will run for a bit longer, if you have not participated yet feel free to do so!
A new page added as addition to our history page. This one on hand miracle healings.
In April 2016 we were joined by Stephen Jeffrey LCSP from Ealing massage Therapy as advisor on massage therapy for Dupuytren’s.
Read our statement on Rare Disease Day 29.02.16
Say Communications organise fundraising event for the BDS 22.01.16
Recent News 03.12.15
Membership can be applied for here
The British Dupuytren’s Society is a UK charity founded in 2011 as a patients’ organisation, supported by medical professionals, and working alongside the International Dupuytren Society (IDS).
The Board of Trustees consists entirely of volunteers: a Dupuytren’s patient as chair, and a Ledderhose and a Peyronie’s patient as trustees. We also have a trustee hand surgeon and a radiation oncologist. We have an advisory board with a few more handsurgeons, and a massage therapist who is very experienced treating Dupuytren’s patients.
The British Dupuytren’s Society was founded in August 2011. Our first step was to create our Constitution and Board of Trustees. We are now registered with HMRC for tax-exempt status as a charity, but since our financial turnover does not meet the minimum requirement we cannot yet apply to become a registered charity. Read more…………
The Curse of the MacCrimmon
A history of Dupuytren’s Contracture. There are many stories as to how the curse arose. Some say that the….
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