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News from the British Dupuytren's Society
The International Dupuytren Society recently awarded Olly Donaldson with its 2011 award for the paper: O.W. Donaldson et al, “The association between intraoperative correction of Dupuytren's disease and residual postoperative contracture“, published in J Hand Surg Eur Vol 2010 35: 220.
The photo below shows Olly center receiving the award from Professor Heinrich Seegenschmiedt (left) and Dr. Bert Reichert (right) at the Dupuytren’s Summit in London on 5 Nov 2011.
Olly's summary is as follows:
I am an orthopaedic registrar at present working in Morriston Hospital in Swansea. I performed the research while working at the Bristol Royal Infirmary under Mr Raj Bhatia, the consultant hand surgeon working there. The aim of the study was to correlate the degree of preoperative deformity, the amount of intra-operative correction achieved and the early (3/12) post-operative results. The paper showed that those with a severe deformity faired less well than those with a lesser deformity (fairly obvious!). It also showed that those with a severe deformity who were fully corrected at surgery were more likely to lose some of that correction than a similar patient who was not fully corrected at surgery. From the surgeon's point of view this allows them to counsel their patients better - e.g. Mr Jones we were unable to fully correct the deformity that you had to your finger but it is unlikely that this will worsen from what you have now. Cf Mr Jones we were able to fully correct your severe deformity at surgery but there is an increased chance you will lose some of that correction. One interpretation of the study is that it doesn't necessarily pay to be too aggressive with surgery to attain full correction as you are likely to lose some of it within the first 3/12.
On November 2nd two hundred people created a giant hand in Covent Garden to highlight Dupuytren's disease, a progressive and debilitating hand condition. This marked the launch of a public awareness campaign It is in your hands.
Further campaigns, by Pfizer included updates aimed at GP's and a number of roadshows in shopping centres around the country:
A member of the British Dupuytren's Society visiting the It is on your hands stand in Birmingham.
18th Jan 2013: The research house is looking for 1-2 patients to interview, they have dates for next week ( Wed Thur Fri) when they can do it, via the computer (webcam), pay £40 to each person who does a 30 minute interview. Qualifications: you must have Dupuytren,s preferably a nodule or cord in one hand at least, and had treatment in the past, be it radiotherapy, surgery or injections.
If anyone get help please get in touch with them Zubair Osman
0207 487 9188
5th Nov 2012: Our new British Dupuytren's shop is opened.
4th Nov 2012: Our new blog is opened.
28th October 2012: Our first AGM went well, thank you to everyone who attended.
08th October 2012: Our first AGM is planned for 28th October where Trustee's and members will review progress in our first year. We invite comment and submissions from the public.
1st October 2012: Xiapex is now available in Derby on the NHS. Contact Mr Chris Bainbridge at the Pulvertaft Hand Centre in the Royal Derby Hospital.
30th Sept 2012: Dupuytren Foundation 2012 Research Grants announced.
07th Aug 2012: Xiapex is now being considered as to whether NICE should review its use in order to develop guidance for it for Dupuytren's.
14th May 2012: Following a resubmission by ourselves and other parties, the Scottish Medical Consortium (SMC) accepts the use of Xiapex for restricted use within the NHS.
23rd April 2012: ITV Tyne Tees report on the North East Treatment Advisory Group recommendation for Xiapex treatment on the NHS.
21st April 2012: Family, friends and Ledderhose patient and blogger Gary Manley participated in a fundraising run for Gary's treatment, and to help with donations to the British Dupuytren's Society. Read more about the event here on Gary's blog
25th Mar 2012: The British Dupuytren's Society were invited to give a talk at the North East British Chiropody & Podiatry Association annual convention. The delegates handout pack for the talk is here.
20th Mar 2012: The North East Treatment Advisory Group (NETAG) has revised its decision from August 2011 and recommends Xiapex on the NHS for Dupuytren’s contracture under limited conditions.
19th Mar 2012: NHS Devon gives conditional approval to use Xiapex injections for treatment of Dupuytren's Contracture on the NHS.
9th Mar 2012: Web-site updates: we have published a history page about Dupuytren's, and also a treatment options leaflet and comparison table for Dupuytren's.
2nd Feb 2012: Real People magazine has published an interview with one of our members who recently had surgery for a Dupuytren's affected finger. You can read her story here.
13th Jan 2012: Collagenase Clostridium histolyticum (Xiapex) is recommended as an option for treatment within NHS Wales. Read a copy of the Pfizer press release.
11th Jan 2012: A book on all aspects of Dupuytren's Disease has been published by SpringerLink: Dupuytren’s Disease and Related Hyperproliferative Disorders (Principles, Research, and Clinical Perspectives), Authors: Charles Eaton, M. Heinrich Seegenschmiedt, Ardeshir Bayat, Giulio Gabbiani, Paul Werker and Wolfgang Wach
16th Dec 2011: Edinburgh Evening News article on Xiapex injections.
07th Dec 2011: Brighton Argus article on Xiapex injections.
05th Nov 2011: International Dupuytren Society Award.
02nd Nov 2011: It's in Your Hands campaign.