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Dr John Glees, who has been our trustee from the moment the charity started, has had an independent audit done of the results of radiotherapy for Dupuytren’s. This is exactly what NICE wanted, in order to be able to give full guidance! We are very happy with the audit and the results.
Dr Glees and his team at Cancer Centre London treated 150 patients over 5 years, using the European Protocol ( 5 days, 3 Gy per day, then 8-12 weeks rest, then repeat).The audit found that 91% of patients had either stabilised or even showed regression of the disease, 4 years after treatment.
This shows that low dose radiotherapy is highly effective provided it is performed in early disease and as it is relatively inexpensive, it offers a good treatment option both private and for use on the NHS. No significant side effects were observed, and patients could continue to use their hands normally during and after treatment.
These are really good results, and offer hope to many people, especially those with a more aggressive form of the disease.
Unfortunately the funding for a secretariat two days per month has stopped per January 2017, so Gemma has withdrawn from the position. That means we are now looking for one or more people to take over looking for grants, organising events and generally assisting the running of the charity. Location is not important, enthusiasm is! Please get in touch if you can help, however many or few hours per month.
While Gary and his wife are running to raise money for the charity, Anna spend two days in February 2017 promoting the charity at a BSSH instructional event, where young aspiring hand surgeons attended lectures by some of the worlds