NICE MISSES CHANCE TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH PAINFUL HAND CONDITION IN ENGLAND

September 2015

The British Dupuytren’s Society (BDS) is astonished that NICE has decided NOT to make collagenase injections available on the NHS for Dupuytren’s contracture, a condition where the fingers gradually bend in towards the palm of the hand and cannot be straightened. Two million patients in England are affected by Dupuytren’s and this decision means that invasive surgery will be the only option to straighten their fingers.

This decision has come after two years of fighting to ensure that new treatments for Dupuytren’s are developed and then made available. Now only people enrolled in clinical trials for collagenase injections will be able to continue receiving treatment.

Dupuytren’s contracture can impact on daily activities making them more difficult, such as holding a knife and fork, opening jars, writing text messages or playing sports.[i,ii]

Anna Schurer, Chief Executive of the BDS, who is also a sufferer of Dupuytren’s contracture said:

“This will create an unfair divide in the UK. Collagenase (Xiapex) injections are already approved in Wales and Scotland; English patients will now only be offered surgery, with a long and painful recovery afterwards and scarring to the hand that makes future treatments more difficult.

“While we understand NICE has a duty to decide if new treatments are cost effective compared to treatments already available on the NHS, we are urging NICE to consider quality of life too. I know from my own experience that recovery after surgery, time off work, and being able look after yourself again and use the affected hand, can take months. I would urge them to consider the patient’s point of view as many patients would like to avoid surgery and opt for far less invasive injections instead.

The BDS has campaigned for this treatment to be made available on the NHS, arguing that investment in treatments for Dupuytren’s is rare, and will become even more so if there is a refusal to provide Xiapex on the NHS.

Anna continued: “We hope that in the near future, as more data becomes available on the advantages of this new treatment, that NICE will reconsider and accept the benefits outweigh the (slight) extra cost.

ENDS

NOTES to EDITORS:

For media enquiries please contact the BDS Secretariat: louise@dupuytrens-society.org.uk or 020 8971 6416.

i Bayat A et al. Ann R Coll Surg Engl 2006; 88(1):3-8i Bayat A et al. Ann R Coll Surg Engl 2006; 88(1):3-8

ii Townley WA et al. BMJ 2006; 332(7538):397-400

iii Rayan GM. J Bone Joint Surg Am 2007; 89(1):189-98

iv Leclerg C (2000): Epidemiology. In Tubiana R, Leclercq C, Hurst LC. Dupuytren’s disease 53-58. Informa Healthcare. [prevalence 3% to 6%]

v NHS Choices http://www.nhs.uk/Conditions/Dupuytrens-contracture/Pages/Introduction.aspx

January 2015

The BDS send the Winstanley, Orrell and Ashton in Makerfield MP a letter and an email about Xiapex, and she has forwarded it to the Secretary of State for Health and the Shadow Health Team, and will let us know what their responses are. She seemed especially worried about the fact that collagenase injections ARE available on the NHS in Wales and Scotland, but won’t be in England.

The International Dupuytren’s Society had their AGM, all motions were passed.

Xiapex now has European license for use in Peyronie’s. Another step forward