The lectures from the May 2015 Dupuytren's conference in Groningen are starting to appear online. Check out what was said and by which specialist, the latest ideas and research is being discussed.
NICE has decided against funding Collagenase injections (Xiapex) on the NHS in England. Instead they have asked for more research. This is devastating news for a lot of patients and will create a divide between England where surgery will be the only option without going private, and Scotland and Wales where Xiapex can be funded. We have therefore lodged an appeal, which has been granted. The fight continues. The appeal meeting will be 30th November. Fingers crossed if you can!
A new page on the website, with tips how to cope with Dupuytren's and Ledderhose
A trial starting in Oxford led by Prof Nanchahal and his team, trying a novel treatment to stop nodules developing any further
The NHS is going to fund a trial looking into the longterm benefits of collagenase injections, compared to needle aponeurotomy
We are running a survey with the International Dupuytren's Society and the Dupuytren's Foundation to try and get some statistics on Dupuytren's and Ledderhose Disease.
The British Dupuytren's Society is a UK charity founded in 2011 as a patients’ organisation, supported by medical professionals, and working alongside the International Dupuytren Society (IDS).
The Board of Trustees consists entirely of volunteers: three of whom are Dupuytren’s patients, and two Doctors one of whom is a surgeon. The patient Trustees have personal experience with Dupuytren’s including mild Ledderhose, treatment via radiotherapy in Germany and the UK, and repeated surgery in the UK. As volunteers we meet regularly via Google+ to discuss the charity, its status, work in progress and new suggestions for projects. The Society also has a panel of volunteer Doctors acting in an advisory capacity.
The British Dupuytren’s Society was founded in August 2011. Our first step was to create our Constitution and Board of Trustees. We are now registered with HMRC for tax-exempt status as a charity, but since our financial turnover does not meet the minimum requirement we cannot yet apply to become a registered charity. Read more............