Useful websites

Partners

The International Dupuytren Society site contains everything you want to know about Dupuytren’s disease, including symptoms, treatment options, related diseases, research, and links to other useful resources.

The Dupuytren Research Group/Dupuytren Foundation is a US site that has a simple mission statement: to promote research, education and global collaboration to find a cure for Dupuytren’s disease.

The Dupuytren’s Disease Support Group was started on Facebook in 2015 with the aim of helping patients explore and discuss all treatments possible for Dupuytren’s, Ledderhose, Peyronie’s amd related conditions. Their website tells of any upcoming Facebook events and gives a lot of general information.

Eaton Hand is a site set up by one of the USA’s leading Dupuytren’s doctors after his retirement from active practise.

This is Dupuytren’s  is a site by a pharmaceutical company with a lot of information and patient stories.

Reference

Book published by SpringerLink: Dupuytren’s Disease and Related Hyperproliferative Disorders (Principles, Research, and Clinical Perspectives), Authors: Charles Eaton, M. Heinrich Seegenschmiedt, Ardeshir Bayat, Giulio Gabbiani, Paul Werker and Wolfgang Wach. ISBN-10:3642226965; ISBN-13:978-3642226960; also available as an ebook.

UK Professional bodies

BSSH – British Society for Surgery of the Hand

Bofas – British Orthopaedic Foot and Ankle Society

BAHT – British Association of Hand Therapists

BAUS – British Association of Urological Surgeons

RCR – Royal College of Radiologists

Podiatry groups: British Chiropody and Podiatry Association, Institute of Chiropodists and Podiatrists, The society of Chiropodists and Podiatrists

UK information

Patient.co.uk information on Dupuytren’s and Peyronie’s.

Channal 4 and Embarrassing bodies on on Dupuytren’s and Peyronie’s.

NHS Choices information on Dupuytren’s

NHS Choices clinical trials

For the latest information on arthritic and rheumatic conditions, Arthritis Digest publish a magazine full of infor mation every few month.

Help remembering your medication or physiotherapy

MyTherapy app, free for Android and iOS.   A medication reminder app to help you keep track of your medications and stay on top of your health. The award-winning MyTherapy app reminds you of the medications you need to take. You can let your family be your safety net, in case you forget a dose. MyTherapy has proved to be an effective pill reminder in multiple studies as well as a pain symptom diary.

For Windows Phone users there is a separate app they can use, called Pillbox .

Help accessing medication that is not normally available

WEP Clinical is a company that is committed to helping patients access the right medication for them and to find out about trials being performed anywhere in the world.

To talk about feeling down or depressed

The Samaritans have a 24 hour helpline for those who need to talk through their feelings.

Dupuytren’s information

Keith Denkler MD (US surgeon) useful website on Dupuytren’s and different treatments with photo’s. The page linked to contains lots of useful information about treatment with Xiaflex.

Conference presentations from the 2010 Dupuytren’s Symposium in Miami.

Conference presentations from the 2015 Dupuytren’s Symposium in Groningen.

Groningengroup

 

Xiapex (Xiaflex in the US)

Collagenase clostridium histolyticum on Wikipedia

US site about Xiaflex including the drug data sheet

Dealing with Dupuytren’s by Auxilium

New clinical trials on Xiaflex, comparing manipulation to use of a dynamic splint, and using autologous lipografting

Research paper: Late Complications of Clinical Clostridium Histolyticum Collagenase Use in Dupuytren’s Disease (Warren M. Rozen, Yasith Edirisinghe, John Crock)

Percutaneous Needle Fasciotomy/Needle Aponeurotomy

Percutaneous needle fasciotomy for Dupuytren’s disease: report on a randomised clinical trial and related research, (2012) Rijssen, Annet Laura van. This thesis contains an excellent and up to date summary of the available clinical treatments for Dupuytren’s.

New Report on Needle Aponeurotomy for Dupuytren Contracture in over 1,000 fingers, finding that PIP joints are more difficult to correct and have higher recurrence.

Videos

For videos on Dupuytren’s disease and an explanation of treatments see these sites.

Medicine in a nutshell: Overview of Dupuytren’s Disease

                                          Treatment of Dupuytren’s Disease

                                         The Theatre Walk Through