The International Dupuytren Society site contains everything you want to know about Dupuytren’s disease, including symptoms, treatment options, related diseases, research, and links to other useful resources.
The Dupuytren Research Group/Dupuytren Foundation is a US site that has a simple mission statement: to promote research, education and global collaboration to find a cure for Dupuytren’s disease.
The Dupuytren’s Disease Support Group was started on Facebook in 2015 with the aim of helping patients explore and discuss all treatments possible for Dupuytren’s, Ledderhose, Peyronie’s amd related conditions. Their website tells of any upcoming Facebook events and gives a lot of general information.
Eaton Hand is a site set up by one of the USA’s leading Dupuytren’s doctors after his retirement from active practise.
This is Dupuytren’s is a site by a pharmaceutical company with a lot of information and patient stories.
Book published by SpringerLink: Dupuytren’s Disease and Related Hyperproliferative Disorders (Principles, Research, and Clinical Perspectives), Authors: Charles Eaton, M. Heinrich Seegenschmiedt, Ardeshir Bayat, Giulio Gabbiani, Paul Werker and Wolfgang Wach. ISBN-10:3642226965; ISBN-13:978-3642226960; also available as an ebook.
UK Professional bodies
BSSH – British Society for Surgery of the Hand
BESS – British Elbow and Shoulder Society
Bofas – British Orthopaedic Foot and Ankle Society
BAHT – British Association of Hand Therapists
BAUS – British Association of Urological Surgeons
RCR – Royal College of Radiologists
Patient.co.uk information on Dupuytren’s and Peyronie’s.
NHS Choices information on Dupuytren’s
NHS Choices clinical trials
For the latest information on arthritic and rheumatic conditions, Arthritis Digest publish a magazine full of infor mation every few month.
Help remembering your medication or physiotherapy
MyTherapy app, free for Android and iOS. A medication reminder app to help you keep track of your medications and stay on top of your health. The award-winning MyTherapy app reminds you of the medications you need to take. You can let your family be your safety net, in case you forget a dose. MyTherapy has proved to be an effective pill reminder in multiple studies as well as a pain symptom diary.
For Windows Phone users there is a separate app they can use, called Pillbox .
Help accessing medication that is not normally available
WEP Clinical is a company that is committed to helping patients access the right medication for them and to find out about trials being performed anywhere in the world.
To talk about feeling down or depressed
The Samaritans have a 24 hour helpline for those who need to talk through their feelings.
Keith Denkler MD (US surgeon) useful website on Dupuytren’s and different treatments with photo’s. The page linked to contains lots of useful information about treatment with Xiaflex.
Conference presentations from the 2015 Dupuytren’s Symposium in Groningen.
Xiapex (Xiaflex in the US)
Collagenase clostridium histolyticum on Wikipedia
US site about Xiaflex including the drug data sheet
Dealing with Dupuytren’s by Auxilium
New clinical trials on Xiaflex, comparing manipulation to use of a dynamic splint, and using autologous lipografting
Research paper: Late Complications of Clinical Clostridium Histolyticum Collagenase Use in Dupuytren’s Disease (Warren M. Rozen, Yasith Edirisinghe, John Crock)
Percutaneous Needle Fasciotomy/Needle Aponeurotomy
Percutaneous needle fasciotomy for Dupuytren’s disease: report on a randomised clinical trial and related research, (2012) Rijssen, Annet Laura van. This thesis contains an excellent and up to date summary of the available clinical treatments for Dupuytren’s.
New Report on Needle Aponeurotomy for Dupuytren Contracture in over 1,000 fingers, finding that PIP joints are more difficult to correct and have higher recurrence.
For videos on Dupuytren’s disease and an explanation of treatments see these sites.
Medicine in a nutshell: Overview of Dupuytren’s Disease