Useful websites

Partner Societies

The International Dupuytren Society site contains information on everything you want to know about Dupuytren’s disease, including symptoms, treatment options, related diseases, research, and links to other useful resources.

The Dupuytren Research Group/Dupuytren Foundation is a US site that has a simple mission statement: to promote research, education and global collaboration to find a cure for Dupuytren’s disease.

The Dutch Dupuytren’s Society, active from 2017. Stichting Dupuytren Nederland 

The German Dupuytren Society Deutsche Dupuytrensche Gesellschaft.

The Canadian Dupuytren Society  in English, and in French Le Société Canadienne de Dupuytren

The Italian Dupuytren Society.

The Russian Dupuytren’s Society .

Informative sites

Eaton Hand is a site set up by one of the USA’s leading Dupuytren’s doctors after his retirement from active practise.

This is Dupuytren’s  is a site by a pharmaceutical company with a lot of information and patient stories.

UK Professional bodies

BSSH – British Society for Surgery of the Hand

BESS – British Elbow and Shoulder Society

Bofas – British Orthopaedic Foot and Ankle Society

BAHT – British Association of Hand Therapists

BAUS – British Association of Urological Surgeons

RCR – Royal College of Radiologists

Podiatry groups: British Chiropody and Podiatry Association, Institute of Chiropodists and Podiatrists, The society of Chiropodists and Podiatrists

European bodies

The European Association of Urology

FESSH – The Federation of European Societies for Surgery of the Hand

UK information

Patient.co.uk information on Dupuytren’s and Peyronie’s.

NHS Choices information on Dupuytren’s

NHS Choices clinical trials

Help with recovery after treatment, medication or physiotherapy

MyTherapy app, free for Android and iOS.   A medication reminder app to help you keep track of your medications and stay on top of your health. The award-winning MyTherapy app reminds you of the medications you need to take. You can let your family be your safety net, in case you forget a dose. MyTherapy has proved to be an effective pill reminder in multiple studies as well as a pain symptom diary.

Help with the recovery from surgery can be found by using this app, designed by doctors: MyRecovery

Another app with good hand exercices is this one, designed for stroke patients but useful for other hand conditions as well.

For help with your everyday exercises and monitoring the progress your Therapist might be able to set you up with the app on ‘Rehand’

And specifically for Apple and iPhone, therre are these apps: CoreHand and HandTherapy designed by professionals as well.

Help accessing medication that is not normally available

WEP Clinical is a company that is committed to helping patients access the right medication for them and to find out about trials being performed anywhere in the world.

To talk about feeling down or depressed

The Samaritans have a 24 hour helpline for those who need to talk through their feelings.

Dupuytren’s information

Conference presentations from the 2010 Dupuytren’s Symposium in Miami.

Conference presentations from the 2015 Dupuytren’s Symposium in Groningen.

Groningengroup

Videos

For videos on Dupuytren’s disease and an explanation of treatments see our YouTube Channel. We have two webinars on different treatment types for Dupuytrens, a webinar on Ledderhose, one on research, one on radiotherapy and four modules on how to cope mentally with a Dupuytren diagnosis.

Medicine in a nutshell:

                                         Overview of Dupuytren’s Disease

                                         Treatment of Dupuytren’s Disease 

                                         The Theatre Walk Through

Dr Eaton from the Dupuytren Research Group explains what we know about the disease and it’s surgical treatments in this 2019 video.

Abroad

A French society that promotes minimally invasive treatments.