The International Dupuytren Society site contains information on everything you want to know about Dupuytren’s disease, including symptoms, treatment options, related diseases, research, and links to other useful resources.
The Dupuytren Research Group/Dupuytren Foundation is a US site that has a simple mission statement: to promote research, education and global collaboration to find a cure for Dupuytren’s disease.
The Dutch Dupuytren’s Society, active from 2017. Stichting Dupuytren Nederland
The German Dupuytren Society Deutsche Dupuytrensche Gesellschaft.
Eaton Hand is a site set up by one of the USA’s leading Dupuytren’s doctors after his retirement from active practise.
This is Dupuytren’s is a site by a pharmaceutical company with a lot of information and patient stories.
UK Professional bodies
BSSH – British Society for Surgery of the Hand
BESS – British Elbow and Shoulder Society
Bofas – British Orthopaedic Foot and Ankle Society
BAHT – British Association of Hand Therapists
BAUS – British Association of Urological Surgeons
RCR – Royal College of Radiologists
FESSH – The Federation of European Societies for Surgery of the Hand
NHS Choices information on Dupuytren’s
NHS Choices clinical trials
A charity that can help with questions about genetics, though they are not specialised in Dupuytren’s: Gene People UK.
Help with recovery after treatment, medication or physiotherapy
MyTherapy app, free for Android and iOS. A medication reminder app to help you keep track of your medications and stay on top of your health. The award-winning MyTherapy app reminds you of the medications you need to take. You can let your family be your safety net, in case you forget a dose. MyTherapy has proved to be an effective pill reminder in multiple studies as well as a pain symptom diary.
Help with the recovery from surgery can be found by using this app, designed by doctors: MyRecovery
Another app with good hand exercices is this one, designed for stroke patients but useful for other hand conditions as well.
For help with your everyday exercises and monitoring the progress your Therapist might be able to set you up with the app on ‘Rehand’
Help accessing medication that is not normally available
WEP Clinical is a company that is committed to helping patients access the right medication for them and to find out about trials being performed anywhere in the world.
To talk about feeling down or depressed
The Samaritans have a 24 hour helpline for those who need to talk through their feelings.
Specifically for Peyronie’s patients or their partners struggling with Peyronie’s related questions is this website.
Conference presentations from the 2010 Dupuytren’s Symposium in Miami.
Conference presentations from the 2015 Dupuytren’s Symposium in Groningen.
For videos on Dupuytren’s disease and an explanation of treatments see our YouTube Channel. We have two webinars on different treatment types for Dupuytrens, a webinar on Ledderhose, one on research, one on radiotherapy and four modules on how to cope mentally with a Dupuytren diagnosis.
Medicine in a nutshell:
Dr Eaton from the Dupuytren Research Group explains what we know about the disease and it’s surgical treatments in this 2019 video.
A video that explains symptoms and treatments.
A website for patients and their partners.